National Renal Transplant Registry
Beaumont Hospital.
2002
The purpose of the registry is to provide robust data capable of informing the outcomes of renal transplants/recipients in Ireland. The upkeep of a national registry is required by law (SI No325/2012) which came into effect in August 2012 in compliance with EU Directive 2010/53/EU on Standards of Quality and Safety of Human Organs intended for Transplantation. The upkeep of the National Registry complies with DIRECTIVE 95/46/EC of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data.
All consecutive renal transplants from 1964 performed in Ireland. Data collection starts at time of transplant and finishes at failure of allograft or death of recipient.
This database is a renal database collecting data since 1964. It is used to assess graft survival and patient survival, monitor factors affecting outcomes.
Data manager, renal statistician.
Includes details on date of transplant, time on dialysis prior to transplant, end stage kidney disease, length of stay. Patient details include: gender; area of residence and date of birth.
Data dictionary is provided for data manager –not available online.
No.
Gender and area of residence.
Data is collated in the renal unit from hospital based systems and laboratory reports. Collected at time of transplant and yearly afterwards.
European Dialysis and Transplant Association (EDTA) renal disease code.
150
Annual report available on hospital web site.
National Kidney Transplant Service Director.
CEO.
Not available.